Showing posts with label hospital. Show all posts
Showing posts with label hospital. Show all posts

December 23, 2015

Staying hopeful

Last week my friend J died after only a few days with hospice care. I saw her on Thursday at our support group and days later she died. On Sunday Rik and I attended her memorial service. And tonight I went with friends to a shiva minyan at her home. The mourners? Her wife, her college-aged daughter, her sister and other family members.

Joanie, like me, had lived with metastatic breast cancer for more than a few years. We shared many struggles and difficulties, but I think we both approached living with advanced cancer in similar ways.

Sometimes it sucks.

Other times it's just life. Or as our friend D from group puts it, the glass is full.

No, my nickname isn't Pollyanna. My life isn't all smiles and good cheer. It's just that I'd rather find the joy in each day if I can.

Even when I was hospitalized recently and shaking with fever and chills, after the shaking stopped, I tried to relax and practice my yoga breathing. The next day, if I could eat, I wanted some vitamin CH (that's chocolate to the rest of you). 

I don't know how, even in this aftermath of yet another friend's death from advanced cancer, I can still smile. But somehow I manage to find joy in every day.

You might find this article from CURE Magazine of note: Hope in the Face of Death: Living With Metastatic Breast Cancer. The author notes that there are long-term outliers living with mets, naming me and others among them. 

Every click on the article results in a donation to METAvivor. And if we don't give now to fund research into metastatic breast cancer, then when?


November 29, 2015

Thanksgiving

I really don't have anything interesting to say about Thanksgiving. You'd think I would, but it seems maudlin to talk about why am I still alive after watching so many friends die of their cancers. So I'm turning over this post to my wonderful husband Rik, who wrote it November 22, 2015 on his Facebook page.

Why I am grateful this Thanksgiving.
Great article from the New York Times today brought it all home. Adding some personal reasons too!
Grateful for Jill being in my life for 21 plus years, and her having the best team of medical care in the world over the last 16 years to manage her Breast Cancer and mets disease, but particularly the last month as she has been hospitalized with two infections, continued chemo, almost finished radiation on four spots and successfully managed Gamma Knife to her brain.
Also grateful for the support of my community of friends, neighbors, and synagogue members who have brought us meals, rides for Jill, company, and of course my colleagues at Roosevelt High for all the support in rides, hugs, good wishes, coffee, coverage of classes for me when needed, and giving me lots of slack, and my students who always are wonderful caring human beings who get that school assignments are not the most important things in life.
See attached photos for Jill in action making the cancer go away!
Jill wears the full gamma knife gear

"What, no second breakfast?!"

And at the conclusion of radiation to four separate spots. That face mask was awful and didn't even look like her.

October 27, 2015

Home sweet home

Yay! Swedish sent me home again this afternoon.

Infectious Disease Dr said I have 2 bacterial infections - klebsialla (coliform, or a kind of E. coli, which everyone carries) and serratia (water based). Who knows how I got them or why. I'm getting oral antibiotic Levaquin now, once every 24 hours, for five days. Don't click on the links unless you enjoy being grossed out or like medical stuff.

My friend G told me the following: "Serratia marcescens belongs the family Enterobacteriaceae, which includes E.coli and Klebsiella pneumoniae. They are both associated with nosocomial infections (hospital acquired). Serratia in particular is associated with catheter-associated bacteremia."

So it was correct to presume that my PICC line was the cause of these infections. And I have been prone to infections for several years, since my early onset breast cancer in 1999 (I developed toxic shock syndrome in the drain placed after my lumpectomy). This shouldn't have surprised anyone. And yet it did. Even though I've been hospitalized several times over the years for infections.

But I am healthy now and ready to pick up life from where it veered last week. Thank you Swedish Medical Center's phenomenal staff!

October 26, 2015

Update Monday

I am recovering bit by bit.

The weekend was full of antibiotics and friends. Today I learned that I most likely have two different infections. One is coliform, the bacteria that can cause E. coli. You hear about kids eating hamburgers filled with fecal bacteria. But we all harbor some kind of E. coli and it takes just the right thing to trigger your own body's stuff. I think I got that right.

Dr infectious disease named the second infection in the early morning and I can't remember it now. It had something to do with water/blood bacteria.

I've had more IV antibiotics today but if Friday's and Saturday's cultures come back growing the same thing as Thursday's, I can move to an oral antibiotic and go home. So I hope to be here until tomorrow. As you know, nothing is certain when you're inpatient at the hospital.

October 24, 2015

At Swedish

I guess this is really how one "celebrates" breast cancer month: by getting admitted to the hospital.

On Thursday I developed fever and chills around 2 pm during my support group. The great social worker took me over to a nurse for my temperature (high). She called Dr G, and got me a wheelchair ride to the ER.  After a few hours, a chest X-ray, and sharing with both Dr G and the ER doc, I learned I had pneumonia. Rik's colleague gave him a ride from school and eventually we went home around 6 pm.

On Friday I awoke to a call from the ER. They think I have a blood infection, come right back. I picked up Rik from school and we arrived around 10 am. More checks, more drugs, more fever/chills. Lost my lunch several times. Dr G decided to admit me but a room wasn't ready until almost 6 pm.

Now I'm on the 12th floor with a fantastic view of downtown and the waterfront. I've had numerous antibiotics, platelets, and a blood transfusion. No one knows exactly what kind of infection I have. Most likely to be in my PICC line, which has also received its own special antibiotic.

I actually slept last night, no doubt due to fatigue, less sleep the night before and Ambien. God bless sleeping pills. I had fever /chills again  in the middle of the night but they haven't returned yet.

After my shower this afternoon I felt the best I have in days. I have energy but am stuck here on my butt until they decide whether or not to pull my PICC line. It all depends on if the infection clears up. Or as Dr G told the infectious disease doc, better to pull it than to risk her life.

So. Waiting and waiting. Bad food corrected by Rik who brought yummy lunch from Bakery Nouveau and friend C who brought dinner from Ma'ono (fried chicken). Boredom corrected by good buddy G who dropped at just the right time, five minutes after I got out of the shower. More friends coming soon. Spoke to my mom twice.

Are you getting the picture?

PS if you can, please give blood you don't have to tell me if you can or cannot. But it's a good thing to do.

April 01, 2010

ouch my elbow!

it would have been a wonderful start to pesach if, after the first seder, i hadn't slipped on a steep, wet driveway and fallen on my left elbow. i was convinced my arm had broken; it hurt almost as much as the left femur did seven+ years ago. our hosts called 911 immediately. c brought out a blanket and pillow for me (it was wet on the street and really cold outside). everyone else freaked out.

the fire truck arrived first and they rolled me onto a back board. then the ambulance came and after some discussion, the emt's decided not to try to put an inflatable splint on my arm for fear it would cause me too much pain. (a good call.) they took me to swedish hospital's er on first hill where the wonderful medical team cut my purse, coat, dress, t-shirt and bra away so they could access my port, get a better look at the elbow and see if i had any other injuries.

after accessing my port they gave me very strong pain meds. the er team tried twice to "reduce" or relocate my elbow but it kept slipping out again. at about 3 am they reached an orthopedist specializing in hands and he came in, was successfully able to reduce the joint. multiple xrays confirmed that there was no fracture.

my left arm is splinted from the knuckles to the shoulder to immobilize my elbow and the arm is in a sling to support the weight. since they'd had to cut off all my clothing, the hospital sent me home in a gown and sweat pants. we finally got home around 5 am.

since tuesday my pain has steadily decreased. with rik's help i've been able to shower, put on clean clothes, get around the house. he is doing everything -- feeding me three meals every day, doing all the household stuff, feeding and walking the dogs, you name it. thankfully he was home this week on spring break.

i see the orthopod again friday morning and will learn more then about whether or not i need surgery. in the meantime our friends have stepped up to help and the synagogue's mitzvah corps is on alert.

my lymphedema is out of control. (i had to fall on my left arm.) the physical therapist called from her vacation to suggest some tips on reducing the swelling in my hand and fingers from the splint.

sorry for typing all in lower case but it is really hard to shift with one hand to get a capital letter. i will post more as i am able but it looks like i am facing 6-8 weeks in a cast. more tomorrow after we see the doc.

at least i get to dream about all the shopping i will do to replace the raincoat, dress and bra...

February 03, 2010

Hospital recap

It's day two of recovery and I spent much of it on the sofa napping. C came over to walk the dogs and L made us both lunch, but I did have both morning and afternoon snoozes.

Some highlights of my hospital stay:

In the surgery prep and waiting area there was a new touch. Instead of warm blankets, the gurneys are covered with a Bair Hugger. It looks like a down comforter made of channeled "paper" with a hose in the middle. Warm air blows into the "blanket" and the heat keeps the patient toasty, so you put energy into healing instead of into shivering. Rik and I laughed out loud when we saw it, but I LOVED it!

Rik went home to feed and walk the dogs, then came back to the hospital around 5 PM.

The anesthesiologist tried hard to access my port but was unsuccessful. He then tried to start a line in my arm -- twice -- with no success. At this point he said he wanted to give me ether to relax me and then he would start an IV in my hand. (I had warned him that my veins were crappy.) The ether worked great. I immediately relaxed and the next thing I know I was in recovery.

By the time I got upstairs to a room it was past 6 PM. Dr. F had already spoken with Rik, who then called my mom, his mom, my sister and several close friends. He sat with me until about 9:00, by which time he was asleep in a chair and I was drowsing on the bed, so he went home.

I needed assistance to get into the bathroom the first couple of times, and then I was good on my own. But I was on the toilet every hour all night long! My pain appeared well controlled; I just had to pee all the time. The good part about being a patient at Swedish is the 24-hour meal plan. I called down for a snack at 4 AM and enjoyed vanilla yogurt with Cheerios and a decaf mocha, then went back to sleep until the next time I had to pee.

The next morning they removed the IV line and I was able to take a shower. I had a second breakfast of mashed potatoes, turkey sausage, a whole wheat roll and some fresh fruit. (I saved the espresso shake as a snack before discharge.)

When Dr. F came in on her rounds, she agreed all was good. When I told her about my having to pee every hour, she checked the rate on the IV pole and it was properly set. The nurse then chimed in that they had just lowered the rate from 50 to 25. "50!" said Dr. F. "I ordered 25!" No wonder I was in the toilet all night long. I had been getting twice the recommended fluid amount.

The morning ended with an unexpectedly pleasant surprise when the room telephone rang. It was the anesthesiologist, Dr. Max Lucero. He was calling to make sure that the port site was okay, and that I had managed well with the IV in my hand.

I gotta say, I have had a number of surgical procedures over the years, and in my experience the anesthesiologist comes in a few minutes before the surgery starts, introduces himself (it's always been a him), starts a line, and I never see him again. That Dr. Lucero called to make sure I was okay is a testimony to his being a caring, concerned medical professional and to Swedish Medical Center, who hired him. Kudos to Dr. L! He can put me to sleep any time.

February 02, 2010

Home again

Just came in, greeted the excited dogs and have unpacked from my one night hospital stay. This is a quick note to say that the surgery went well and I feel fine. The pain has been easily controlled with oral pain meds, but I slept only a bit at a time due to overly ambitious hydration and so was up to pee every hour on the hour all night long.

I plan to take a big nap now and will post more details later. It feels good to be home!

December 30, 2009

Port update

Well, everything went smoothly today. Check in was on time at 6:30 AM, followed by a walk to the surgical prep area, where I got undressed and out on a hospital gown and robe and was asked numerous questions. An IV nurse started a line in my right hand, after saying that she didn't think she was allowed to touch my (bandaged) left hand. So the bandaging really works as a noticeable deterrent.

The interventional radiologist (IR) doc came in for a visit. We hadn't seen him in years, since he placed my first port. When we asked if he knew how long it had been, he told us it was before the hospital got a new computerized records system, so the best answer we can arrive at 4-5 years.

They were a little late taking me to the IR procedure room, where three nurses and techs descended on me. I transferred from the gurney to the scanner bed. They cleaned and draped the area on my right chest and placed a surgical drape over my face (on a frame to keep it away from my eyes). I was able to turn my head and look out the left side. No claustrophobia issues there. They placed an oxygen mask over my nose and mouth when the cannula up my nose bothered me. Then they gave me an antibiotic and started the Versed and fentanyl.

I became VERY relaxed but didn't fall asleep. I didn't notice them giving me local anesthetic. I could hear them talking to each other throughout the procedure but I didn't know what they were doing or understand the terminology, so it didn't bother me. The whole thing went very smoothly and I was well cared for the entire time.

An orderly wheeled me back to recovery, while the IR went doc spoke with Rik in the waiting area to reassure him I was fine. Rik promptly called my mom, his mom and my sister. He came back to my recovery room and spoke with the IR doc about Canada and photography while I devoured a tuna salad sandwich on whole wheat bread, potato chips (baked not fried, it's a hospital after all), water and apple juice. The red Delicious apple didn't appeal to me, and I saved the cookies for later.

Once they let me up and about, we went to the Ambulatory Infusion Center yo get my zometa. The IR team had left my port accessed so it was the work of moments to hook up saline and the drug. Rik brought me a decaf mocha and a huge chocolate-chocolate chip cookie and then got himself some lunch. (The Swedish-Cherry Hill hospital has the best hospital cafeteria in the area.) The zometa finished around 1:30 PM and we went straight home.

I've been napping on the sofa for the past three hours, tossing and turning a bit and snuggled with dogs much of that time. But at 4:30 PM the dogs were telling me they were too hungry to wait any longer for dinner. After all, they'd had breakfast at 6 AM! Rik fed them and I decided I was awake enough to blog.

Post-op care: No driving or alcohol for 24 hours (no hardship there). No shower until Friday (that could be a stinky problem). Take pain meds as needed. Be aware of signs of infection such as redness at the site, elevated temperature, etc.

I believe I will recover quickly and will keep all informed!

New port

I'm off this morning before the crack of dawn to get a new port. Had to bandage my arm so that no one gave me a needle stick in the left hand or arm by accident. Or tried to take my blood pressure. I'll say one thing for the bandaging -- it's hard to ignore.

The new power port should be an improvement over the current portocath. Still, there is risk associated with any anesthesia and procedure. I hope to be blogging again later today.

May 12, 2009

And this is the response from Swedish today

What a quick and positive reply to my letter, sent via email yesterday --

From: Curtis.Veal@swedish.org
Subject: RE: praise for Swedish staff
Date: May 12, 2009 2:46:53 AM PDT
To: jillrik@nwlink.com
Cc: Rod.Hochman@swedish.org

Dear Ms. Cohen:
Thanks so very much for your feedback. We are proud that your patient experience was a positive one, as we strive to deliver the best possible care in the case of every patient we serve.

Again, thanks for your thoughtfulness in taking the time to acknowledge these fine staff. Dr. Hochman & I will be sure that they receive this kind recognition for the great work they do.

Best to you,
Curtis Veal

Curtis F. Veal, Jr., MD
Immediate Past Chief of Staff, Swedish Medical Center
Pulmonary, Critical Care & Internal Medicine
Medical Director, Critical Care & eICU
Swedish Medical Center & The Polyclinic
801 Broadway, Suite 814
Seattle, WA 98122
Office 206.329.1760
Pager 206.997.5051
Mobile 206.790.7008

CONFIDENTIALITY NOTICE: This e-mail message, including any attachments, is for the sole use of the intended recipient(s) and may contain confidential, proprietary, and/or privileged information protected by law. If you are not the intended recipient, you may not use, copy, or distribute this e-mail message or its attachments. If you believe you have received this e-mail message in error, please contact the sender by reply e-mail and destroy all copies of the original message.

Praising Swedish Medical Center

This is the letter I wrote to Rod Hochman, CEO and Curtis Veal, Chief of Staff of Swedish --
May 11, 2009

Rod Hochman MD, CEO
Curtis Veal MD, Chief of Staff
Swedish Medical Center
747 Broadway
Seattle WA 98122

Dear Dr. Hochman and Dr. Veal,

I write today to praise the medical, nursing, and support staff of Swedish’s First Hill campus.

On Saturday I was discharged after a 12-night inpatient stay on the 12th floor of the First Hill campus. Without exception, everyone treated me as an individual, warmly and with compassion. It was as though I was a sister, cousin, niece, even mother to the many people who cared for me, from the A La Carte team who toted me trays of food at all hours to the transport staff, the NACs and RNs. Of course, my doctors Sheldon Goldberg, Martin Siegel, Darlene Barr and Deb Klein were exemplary givers of the kind of medical attention top professionals provide.

I wish to name all these people so that you may place a copy of this letter in each personnel file. These staff deserve such recognition and more!

RNs: Amber (very sweet); Ashley (who really listens); Bonnie (float); Heather; Heidi (charge nurse); Helen (float with a lovely sense of humor); Jemina (float); Joanne; Jon (float extraordinaire); Juliet (old fashioned commitment to standards of care); Karen; Kelly; Kerry; Khristie; Lizzie; Naz; Nicole (so compassionate); Sarah (float); and William.

NACs: Acacia (nursing student); Alex; Amanuel; E; Enri; Marsha; Sheila; Weyni; YaYa

Transport: Sheila and Steve (who transported me twice and greeted me with a smile of recognition on the second occasion)

If I have missed anyone, it’s my own oversight. I tried to keep track of all the many people who took care of me during this lengthy stay.

In addition, I have been a patient at Providence on several occasions before and after Swedish acquired it. In my humble opinion, it appears that Swedish First Hill has fully integrated the Providence commitment to patient care. That to me was the strength that Providence brought to the merger; I am more than pleased to acknowledge that the merger works.

Sincerely and with many thanks to all those who cared for me,



Jill Cohen

May 09, 2009

Still waiting for discharge

I stayed overnight last night because my potassium came in at 3.2 -- not the minimal 3.3 needed. They gave me potassium and magnesium overnight and will do another blood draw for labs at 6:45 AM. Hopefully positive results will arrive between 8 - 9 AM and I will get home this morning!

May 08, 2009

Still in hospital

My potassium did not increase high enough to justify a morning OR afternoon discharge. So I am getting more potassium now for the next 4 hours, then they will re-draw labs. If my potassium count hits 3.3, I get to go home tonight, as late as 9 or 10 PM.

So please visualize 3.3 as the target goal -- 3.5 would be even better -- so I can spend Shabbat at home.

Hopefully going home this morning

If my overnight labs are satisfactory, I have been provisionally approved foo discharge later this morning. YAY!

Meanwhile I have ordered a better breakfast: banana to mash up onto an English muffin; applesauce, soy mocha, and orange juice.

Last night's dinner was amazingly delicious to me. My first protein other than yogurt, I had a french dip sandwich (roast beef on white bread) (L, are you listening?) with au jus on the side. It was so good I ate a whoe half (if you can picture such a thing).

The best thing about food at home will be that I can manage my own portion control without waste. If I only want a little, I can only have a little and not feel that I am sending back perfectly good uneaten food.

So I am hopeful that I wil be discharged around 9 AM and be ensconced on my sofa with the dogs by 10 AM.

May 07, 2009

Hematocrit low; visualize red blood cells

Turns out my red blood cell count has been dropping, which is why I have shortness of breath. I am getting a transfusion later today, and may go home tonight or tomorrow.

So visualize more red blood cells, please! I'd like to spring this joint in a healthy way.

Day 11: Up early again, thought I'd post

Between 5 AM vitals check and meds, I am up early again. Although I did have a better night's sleep in general. I sure hope I can break this pattern of middle of the night awakenings once I am home!

Haven't seen a doc yet so still do definitive word on discharge. I think all the visualization of white cells was helpful, hence yesterday's request for more visualizing of a healthy colon, Or as one friend wrote on Facebook:

:::::::::::::::::::::::::::::::::

May 06, 2009

Jill wants to leave hospital

Since we all did so well visualizing white blood cells, Jill has asked that we all visualize her with a healthy enough colon so that she can leave the hospital ASAP and go home to her puppies!

Another parody

With apologies to Leonard Bernstein etc. and sung to the tune of "Maria" from West Side Story --

Diarrhea
I met you last week, Diarrhea
And suddenly my life may never be the same to me

Diarrhea!
Say it soft and it's almost like pissing
Say it loud and you'll hear the spitzing

Diarrhea,
I soon hope to stop saying
Diarrhea!

Better night's sleep, awaiting breakfast

Turns out that tincture of opium gave me enough control to sleep much of the linght. Atican IV helped too.

Have a ordered the perfect hsopital breakfast for me:
vanilla yogurt in a bowl to mix with canned peaches and a banana

Chocolate Boost to mix with 2 shots espresso over ice for now

Orange juice to mix with gingerale for later

However I will be happy to get back to my own home and eat my own preferences.... soon, I pray.

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