At today's appointment, he asked how I was doing and indeed listened to every complaint about the neuropathy in my feet. I told him I have an opportunity to dance at the end of January, and he said he loves how I set these small goals to achieve.
So he will not put me on any new treatment yet, and even if I go back on chemo, he will avoid the taxanes which gave me this terrible neuropathy. He mentioned carboplatin in passing, but will not make a recommendation yet.
Dr G also prepared a list of all the chemos I've been on (except the CMF in 1999) for Dr Gadi at SCCA, who will give us a second opinion. Dr G wants someone else to talk to about my case, and I heartily agree that he should have someone else to talk to about me. I then picked up a small box with my medical records going back to August 2002: labs, radiology (i.e. scan) reports, surgical reports, lymphedema and other notes from providers. Dr G reviewed this mass of material and says most of it is garbage, but I faithfully dragged it all over to SCCA and left it for Dr Gadi to examine before next week.
Here is my whole cancer treatment history (since mets diagnosis in 2002, and except surgery and radiation):
DRUG WHEN WHY DISCONTINUED
Femara 2002 progression
Lupron | progression
Faslodex | progression
Tamoxifen | progression
Arimidex | progression
Aromasin 2009 progression
5FU 4/2009-5/2009 toxicity (neutropenic fever, typhilitis)
Megestrol 6/2009-4/2010 progression
Abraxane 4/2010-6/2010 toxicity (counts, SOB, progression in liver)
Doxil 6/2010-7/2010 toxicity (hand/foot, mucositis)
Adriamycin 8/2010-10/2010 progression
Faslodex 10/2010-12/2010 progression
Navelbine 1/2011-2/2011 biochemical progression
Gemzar 2/2011-4/2011 counts, biochemical progression
Abraxane 5/2011-11/2011 neurotoxicity
Taxol 12/2011 neurotoxicity