I went to choir rehearsal last week with severe but intermittent pain in my mouth at the ONJ site. It took a double dose of Vicodin to curb the pain. I got in to see the dentist on Friday and she's not sure if it's more BRONJ pain or something else (cue ominous music). She took a panoramic x-ray and requested an older x-ray from my oral surgeon for comparison, and then would talk with Dr G. She said she would call me with the results of her comparison.
Dr Amy Hamilton is my new dentist, and she ranks right up there with Dr G, Dr Judy, Dr Klein, and the other amazing care providers on my team.
It's possible that I have active brain mets again, or even bone mets in my jaw. Evidently this is quite common in breast cancer mets patients, Who knew? Dr G will likely check in with me when I have chemo this week, and I will report what I told Dr Winston: numb spot on my chin, pain at the BRONJ site, and lately even an inability to find the right word in conversation.
That last scares me, but Dr G and I have already spoken about what might be the next chemo. I don't know if he will recommend another gamma knife treatment if there are more active brain mets. The first step is to confirm what, if anything, is happening.
It's been ten years, and I am still learning how to live balanced on this particular teeter-totter of metastatic breast cancer.