I saw the dentist on February 2 and she pulled that annoyingly loose tooth by my ONJ spot. Thankfully, it no longer hurts but there is a big gap where the tooth was and it might never heal.
On February 5, I was curled up on the sofa (something I hardly ever do). When I got up, my ankles and knees hurt. The next day, they hurt even more. And so on, throughout the next week.
I went to chemo on Monday Feb.8 and reported this pain to the nurse. She spoke with Dr G's office, but with a substitute nurse. I'm not sure the message got through to Jacque, but when I sent her a message on Feb. 11, we spoke the same day. Dr G recommended taking ibuprofen to bring down the inflammation. The next day I went in for a special blood draw to confirm the widespread inflammation. By now the pain had been going on for a week. Dr G approved taking ibuprofen around the clock, more than the bottle says, and it seemed to help. But my other labs showed I was very anemic. That explained why I was so tired! I guess I'll hear on Monday if Dr G wants me to have another blood transfusion.
I did nothing this weekend, but in the wee hours of this morning I googled "what to eat when you're anemic." Many sites all recommend the same things: peanut butter, meat. poultry, eggs, legumes. Some places also list pomegranate juice and other super foods. I ate some peanut butter before going back to bed.
Today Rik went to the grocery store and picked up some goodies for us. We have a freshly roasted chicken for dinner with which I'll make some mashed potatoes. D & P brought over apple cake and stayed for an hour's visit. I had hard-boiled some eggs and ate one on toast for lunch. I hadn't had energy to talk with friends for a week, and it was great to have company.
All in all, this setback meant another week of doing almost nothing except lying in bed. I hope that by Thursday, when I see Dr Julie Gralow at Seattle Cancer Care Alliance for a second opinion on next steps, I'll have energy to get there and have an interesting talk.
And that's the news.