I've been meaning to post for a week about the latest news on life in Cancer Land.
The skin metastasis on my scalp grew and became very ugly during my first round of Ibrance. I haven't seen Dr G since before Passover but did go to my dermatologist. He biopsied a sample, cleaned up the yucky area, gave me antibiotic goop and sterile bandages. The site remains clean and much less grotesque although still seems to me about 50% larger.
At the same time a fistula developed near my port access area. This slow growing opening has been around for some time but is now an open wound. The interventional radiology PA recommended removing my port. That's scheduled for Friday.
Last, the ONJ area in my mouth began to hurt again. If other parts of my body show signs of infection, it's no surprise that my mouth would act up. The dentist prescribed ten days of antibiotics.
That's more than enough for one post. Additional stuff coming soon.
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thank you for being who you are Jill
ReplyDeleteMy mom ws just diagnosed with mets earlire this year she can barely walk with out crushes, I am positive for i pray that she be posite for her, i cnt imanine life without her. i wish there was a way you could talk to her.
ReplyDeleteMy mother also has had mets for 2 years now. She had such bad pain she couldn't walk. Treatment has made her stable and she is very active again. There is hope! We found a lot of inspiration from reading Jill's blog and from the stage IV forum at breastcancer.org. It's worth it for you to go to the forum. Lots of wonderful ladies, helpful advice and information, and inspiration :)
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ReplyDeleteThey have me on nonstop antibiotics for my ONJ. Trying a small surgery in a week to clear out the dead bone. *fingers crossed* The fun never ends! I hope that clears it up for you!
ReplyDeleteHi Mandi, make sure you see a specialty dentist who has expertise in ONJ before you have the surgery. Or maybe you already have one. My dentist says the dead bone may just fall out one day. Like losing a tooth when we were kids...
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