April 09, 2013

Tumor markers down

The third (and slightly reduced) cycle of Xeloda appears to have worked. My tumor markers went down about 60 points. I'll have a CT scan in a week or so and we'll see what that says about liver mets.

Although I am now on the "off" week, I'm still fatigued and have had diarrhea the past two days. Still, this is nothing like what I went through in the second cycle. I gave myself the pleasure of a day off today to do household stuff (ironed 12 shirts!), catching up on some TV meanwhile, and read a bit. I also took what seems to have become my daily nap.

Every afternoon between 3 and 4 PM, my body says to me, "Sleep....Sleep..." So I am taking my own advice and getting a daily nap.

The hand-foot syndrome bothers me but staying off my feet today seems to have helped. Plus wearing these UGG slippers with the fleece lining makes a difference over regular shoes, even with the fancy lined socks. I swear I'd wear them out of the house if it wouldn't look so dorky and if it wasn't still so cold here that my ankles would freeze.

6 comments:

  1. I love those fleeced socks. I have restless leg syndrome and if my feet are warm the shaking is less. I would wear them everywhere too...
    I hope you are feeling better, so glad to hear your markers are down...
    Love Alli Xx

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  2. Anonymous6:48 PM

    oh my goodness. ironing 12 shirts!!?? anyone would be exhausted but with all you are going through, that would be rough. so glad to read your markers are down.

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  3. So glad the markers are going in the right direction. Good thing you're taking the time to nap...

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  4. I always swore I'd never buy Ugg boots. . . but when I was on Xeloda, I got a pair and wore them all the time! I even had a pair of Ugg slippers that I wore if I was just going out to run errands. It's seattle, you can wear pajamas and ugly shoes out to the grocery store and no one will notice!
    I also had the daily nap on Xeloda. Glad you are listening to what your body needs. I bet Bob is more than willing to nap with you :-)

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  5. I see you are still fighting the fight. On Saturday we are going back to Swedish Oncology ward to dedicate the exercise bicycle that Donald had installed there. It took almost a year for it to happen, but there is one in the pediatrics ward too. THanks for being Donald's friend.
    best to you.

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    Replies
    1. Mimi, it's good to hear from you. Thanks for sharing the news that Donald's bikes are now up and running for patients to use. It's truly a great memorial to his love of cycling and his tenacious spirit.

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