September 12, 2012

Up and down and up and down

My energy levels have been up and down for the last week. I have alternated 5 mg and 10 mg doses of Afinitor every night and even this seems to be a bit too much. I plan to report to Dr G's office tomorrow.

This leaves me with about 3-4 good hours each day in which I run an errand, write this blog, etc. Then I collapse on the sofa, not to sleep but simply because I can't move any more. So far this week I have been able to accomplish shopping for groceries, going to Home Depot to replace a water filter (no luck there, so a wasted trip), shopping with a friend, and lunch with another friend. Tonight I will attend my choir rehearsal and tomorrow I will try to attend my support group and a synagogue meeting.

1 comment:

  1. Hello Jill,

    I've been a follower of your blog for quite awhile. Most of the time my "google reader" has over 1000 post waiting to read and so often times I've gotten frustrated and just deleted everything and started over! Just recently, I began reading your blog from the very beginning. It took me the better part of 3 days, but I read every word. There is no way that I can express to you how much I appreciate that you have shared your cancer journey. You are one amazing woman, a true fighter. I, too am on this journey. I'm a member of this club that I never wanted to be a part of. Besides, I hate PINK! I was diagnosed in July of 2008. Invasive Ductal carcinoma, Stage 2B. I had a mastectomy in August 2008. I began chemotherapy (4 rounds of Taxotere/Cytoxin) in September 2008. In February of 2009 I had a total hysterectomy because my cancer was ER/PR + and HER-. Since then, I've been taking Arimidex. So far, I've had two clean PET scans. Last week, my oncologist mentioned that my Alkaline Phosphatase (never even heard of it) was elevated and apparently it has been for several months. He retested and today called to tell me he wants a Cat Scan. He said it could be liver or bone mets. He thinks it's a problem with my liver. He also changed me over to Femara because of the bone pain that the Arimidex has caused me. Your story gives me hope...hope that if I do have to face cancer again, I doesn't mean a death sentence. It doesn't mean I have to give up! In January, I will be 48 years old. I've got three children (ages 12, 8 and 6) and my husband and I have been married for 15 years! Thank you for your honesty, for your willingness to let others into your life and to be vulnerable for the sake of bringing encouragement here on your blog. I was sad to hear of Pumpkins passing...what a cutie! Sure wish I could hear your Folk group in person!
    Thanks for letting me tell you my story! You have the biggest, most wonderful smile, Jill! Blessings to you!