I saw Dr G yesterday and the latest news indicates stability. My tumor marker went up a few points, but is basically stable since I've been on the Afinitor.
Dr G agreed that my crushing fatigue of a week ago might have been due to the mouth infection as well as the Afinitor. He has me alternating 5 mg and 10 mg doses of Afinitor to see if I can move back to the higher dose with no ill effects.
He's ordered a chest, abdomen and pelvis CT and a brain MRI in three weeks and then we will know more about how well this combo works
I asked Dr G about some statistics related to his practice. He treats about 20 patients for metastatic breast cancer. Of those, about half have lived with mets around ten years (could be seven, eight, nine years -- I didn't press him for details). When I asked him if anyone had lived longer than ten years, he looked me in the eye and said, "You."
I'm at ten years and 18 days! And I'm looking forward to dancing with this cancer for much longer.